My Miracle Child: A Story of Hope and Resilience
Living with the reality of Gestational Alloimmune Liver Disease (GALD) has been a journey I never anticipated—a path paved with heartbreak, resilience, and, ultimately, gratitude. It opened doors to an unexpected world of connection with other moms and medical professionals who understand the weight of neonatal loss. Through their stories and experiences, I’ve come to realize just how rare it is for babies like mine to survive.
Many parents faced with GALD never get to hold their miracle child, and for a long time, I wondered, “Why me, God?” But every time I see my son, Okatakyie, I am reminded of the answer.
Now three years old, he is living proof that miracles do happen. Despite being born at just 26 weeks and weighing a mere 950 grams, he survived where so many could not. He braved the challenges of neonatal hemochromatosis, spent 18 harrowing weeks in the NICU, and emerged as a fighter—my warrior.
Every milestone he meets feels like a victory over the odds. Whether it’s his first steps, words, or his radiant smile that lights up every room, Okatakyie shows me daily what strength, courage, and determination look like. His resilience inspires me to be better—not just as a mom but as a person.
Through him, I’ve found my purpose: turning my grief into hope for others.
Founding the nonprofit was my way of honoring the memories of my other children while channeling the strength I draw from my miracle child. My journey has been one of the most emotionally draining experiences of my life, but it has also been profoundly transformative. Every day, I look at life through Okatakyie’s eyes—eyes filled with hope and joy.
He reminds me that even in the face of despair, there is light to be found. While the pain of loss will always linger, the gratitude I feel for my miracle child outweighs it. Through our nonprofit, I hope to offer the same solace and strength to grieving parents that Okatakyie has given me. Together, we can turn pain into purpose, loss into love, and sorrow into hope.